this was genuinely so beautiful. i relate to this so much. most people don’t understand the grief that happens after diagnosis. yes it’s a good thing, but it also makes everything in the past feel like a lie. thank you for writing this <3
Sorry to hear you’re having a hard time, Elly, and also sorry that you were let down by medical professionals who could / should have helped you at a younger age.
Not only do you write about such a difficult problem beautifully, but you’re also writing about it here with a lot of wisdom and maturity. That makes me wonder if you’re perhaps handling it better than you realise, or better than you’re giving yourself credit for.
I hope you do soon find more acceptance for your recent diagnosis, and more compassion for yourself, as you’re a wonderful person, and you’ve been a joy to get to know over the last couple of months.
If there’s one thing I could say in the hope it might help is that I don’t think there are many things in this life that don’t get easier with time…
I am usually 'no regrets' about late diagnosis, but you've made me stop and ponder and you know what? I was so fucked in my twenties. Destructive and probably quite malignant. You're supposed to have it all together. I did not have it all together. At all. If I could re-do any of it, I'd re-do my twenties. For my friends and family just as much as for myself.
Thanks for sharing this one Elly, it's fucking beautiful and it's actually got me a little emotional. You've got a power.
Lewis, this has honestly just made my day. Thank you so much for taking the time to read it and for really thinking about your own experiences, it's such a mind fuck isnt it?
It absolutely is a mind fuck. And every time I think I've got my head around it I'll read something or have a conversation that makes me realise I'm still a long way off. Which makes sense; I spent forty-six years not knowing, I don't get to suss it all out in just two.
The consultant who diagnosed me said "Don't mourn the boy who didn't live, celebrate the man who still can." I think about that so much that I should probably just get it tattooed.
It would've been great if things had been easier for both of us. But we probably wouldn't be having this conversation if they had been.
this was genuinely so beautiful. i relate to this so much. most people don’t understand the grief that happens after diagnosis. yes it’s a good thing, but it also makes everything in the past feel like a lie. thank you for writing this <3
You're an angel, thank you ❤️
Sorry to hear you’re having a hard time, Elly, and also sorry that you were let down by medical professionals who could / should have helped you at a younger age.
Not only do you write about such a difficult problem beautifully, but you’re also writing about it here with a lot of wisdom and maturity. That makes me wonder if you’re perhaps handling it better than you realise, or better than you’re giving yourself credit for.
I hope you do soon find more acceptance for your recent diagnosis, and more compassion for yourself, as you’re a wonderful person, and you’ve been a joy to get to know over the last couple of months.
If there’s one thing I could say in the hope it might help is that I don’t think there are many things in this life that don’t get easier with time…
Robbie, this is so lovely, thank you so much for taking the time to read it and for being so kind!
Of course! Please don't hesitate to shout if there's anything I can do to help. Have a lovely weekend, Elly. See you next week!
I genuinely really appreciate that, thank you Robbie!
Great personal essay! Relatable!
Thank you for taking the time to read it, Chris!
I am usually 'no regrets' about late diagnosis, but you've made me stop and ponder and you know what? I was so fucked in my twenties. Destructive and probably quite malignant. You're supposed to have it all together. I did not have it all together. At all. If I could re-do any of it, I'd re-do my twenties. For my friends and family just as much as for myself.
Thanks for sharing this one Elly, it's fucking beautiful and it's actually got me a little emotional. You've got a power.
Lewis, this has honestly just made my day. Thank you so much for taking the time to read it and for really thinking about your own experiences, it's such a mind fuck isnt it?
I wish things had been easier for the both of us.
It absolutely is a mind fuck. And every time I think I've got my head around it I'll read something or have a conversation that makes me realise I'm still a long way off. Which makes sense; I spent forty-six years not knowing, I don't get to suss it all out in just two.
The consultant who diagnosed me said "Don't mourn the boy who didn't live, celebrate the man who still can." I think about that so much that I should probably just get it tattooed.
It would've been great if things had been easier for both of us. But we probably wouldn't be having this conversation if they had been.